Increasingly, patients are being asked to tell their stories to regulators, legislators, and thought leaders who establish health policies. Their stories provide unique insights not always apparent in data and statistics. Working together, patient stories and data tell a story that is useful and persuasive.
Too often, however, patients are asked to tell their stories in a vacuum or are thrust into participating in discussions without understanding how their experience can best be conveyed to decision makers.
Established in 2019, PREP trains patients to tell their stories differently and to use their story as the “spice” to a larger, more purposeful discussion to aid in making policies decisions. The goal is to move beyond the traditional — “tell us your story” — approach to one that makes better use of their experience.
For the most part, PREP training is agnostic because most of the information patients need to effectively engage in public policy is non-disease related, non-product specific, and non-industry focused.
Training can be
PREP was piloted with 15 device patients and 1 care partner with demonstrated results well beyond original expectations of their participation.
Think of PREP as a ‘boot camp’ for teaching patients the ins and outs of Washington, DC whether participating on a national committee, submitting public comments, giving a panel presentation, interpreting a white paper, etc.
For more information, contact Gwen.