Ideas and Insights

Yes, Patients Can Change Public Policy — But Will Anyone Listen?

When I was a newbie in Washington, DC in the 90s working for US Department of Health and Human Services (HHS) in the Office of Organ Transplantation (DOT), one of my jobs was organizing public hearings to finalize organ allocation policies — in other words, identifying which factors (age, geography, race, blood type, waiting time) […]

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Is Your Doctor Really Listening?

It was 1998 and I had just moved to Louisville, Kentucky, very close to where I grew up as a child.  I was returning to my native state to care for my mother who was dying of ovarian cancer and her mother who was bedbound by a stroke.  My life had been interrupted and part […]

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