Ideas and Insights

No One Ever Says, “I Love You With All My Brain”
01.24.2020

As a woman living with heart disease, I approach February with mixed emotions.  Like so many others, I don a red sweater on the first Friday of the month and send valentines to friends and family.  I eat a little too much chocolate and swear I’ll make up for it at the gym. But it’s […]

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Finding Your Own Patient Voice
09.4.2019

One of the most surprising conversations I had while working in industry came when a colleague of mine in the regulatory department called to get my input on the value of patient engagement to the company.  He was drafting a response to FDA’s proposed ombudsmen-type “patient office” and new requirements to include patient experiences in […]

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Is Patient Storytelling a Civic Duty?
06.5.2019

During a meeting with the American College of Not-to-be-Named-Doctors, their staff shared with me that the Incoming President’s plan was for it to be “the year of the patient.” Immediately, I wondered why it wasn’t every year. Clearly the mission of any professional medical society is to be a voice for its members, but their […]

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What Having Heart Disease Has Taught Me
06.4.2019

I’m often asked what it’s like to live with heart disease. For me, the physical limitations have been much less difficult to manage than the emotional and psychological ones. Heart patients are cautioned about becoming “cardiac cripples”—overly anxious and worried about their future to the point that it affects their health. Yep, I’ve done that. […]

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