If you could change our healthcare system in the US, what would be the first thing you would do? That was the question posed to an audience of patients, caregivers, and their close friends recently at a forum in Washington, DC on the anniversary of the enactment of the Affordable Care Act. Hands raised immediately. […]

Maybe it’s because I’m a storyteller that everyone I meet tells me they want to write a book. What they really want to do is write their life story. Maybe not all of it, but the unforgettable three or four events that have shaped their life. One reason I believe people want to tell their […]

As a woman living with heart disease, I approach February with mixed emotions.  Like so many others, I don a red sweater on the first Friday of the month and send valentines to friends and family.  I eat a little too much chocolate and swear I’ll make up for it at the gym. But it’s […]

One of the most surprising conversations I had while working in industry came when a colleague of mine in the regulatory department called to get my input on the value of patient engagement to the company.  He was drafting a response to FDA’s proposed ombudsmen-type “patient office” and new requirements to include patient experiences in […]